AD, Patient & Community Liaison

Job Description:

• Deliver accurate and empathetic information about disease progression, symptoms, and unmet needs for patients and caregivers
• Empower patients and caregivers with knowledge and tools to navigate their DMD or SMA journey
• Educate patients and caregivers about the benefits, proper use, and potential side effects of brand products using approved materials and guidelines
• Develop relationships with local advocacy chapter le
• Attend events throughout the country, host the Novartis table, meet DMD or SMA families, answer questions, and deliver presentations
• Respond to virtual inquiries from patients and caregivers by phone or email
• Hold virtual meetings with local patient advocacy le and communities
• Provide insights to cross-functional teams to support educational materials, presentations, resources, and market strategy
• Identify gaps in patient and caregiver knowledge and recommend improvements to educational content
• Adhere to regulatory and compliance standards, including Adverse Events training and reporting
• Document interactions and feedback to improve the education program and support outcomes tracking
• Participate in internal and business reviews and prepare meeting materials
• Participate in functional planning, including tactical plans and budgets
• Maintain working knowledge of Concur, Salesforce, FUSE, and related platforms and processes
• Maintain current scientific knowledge of responsible products and therapeutic areas
• Ensure compliance with Novartis policies, Code of Conduct, laws, and regulations

Requirements:

• Bachelor’s degree in healthcare (i.e. social work, genetic counseling) education, or a related field
• Minimum of 5 years of experience in patient education, pharmaceutical, or healthcare support roles
• Ability to travel 70% of time, with weekend travel required
• Reside close to a major airport
• Bilingual (Spanish/English)
• Exceptional communication and interpersonal skills
• Ability to present complex information in an empathetic, clear, and engaging manner
• Experience delivering presentations in front of a live audience
• Experience working within regulatory and compliance guidelines in the healthcare or pharmaceutical industries
• Proficiency in using virtual tools for education, such as video conferencing and webinars
• Ability to think creatively and conceptually
• Ability to lead, motivate, develop, and influence others
• Strong teamwork and collaborative skills and mindset
• Proven ability to work effectively in a matrixed environment
• Financial/budgetary experience
• Experience in neuroscience/neuromuscular therapies, gene therapy and rare disease is desirable

Benefits:

• Performance-based cash incentive
• Eligibility to be considered for annual equity awards, depending on the level of the role
• Health benefits
• Life benefits
• Disability benefits
• 401(k) with company contribution and match
• Vacation
• Personal days
• Holidays
• Other leaves